7greeneyes
MedicalNLovingIt!
- Joined
- Jul 25, 2008
- Messages
- 8,071
- Reaction score
- 789
Got some real bad news. My function has dropped from 25% to 17% in just 6 months, most likely due to the prolonged inflammation of the kidney from a form of backflow problem called vesicoureteral reflux. He said my function is lower then whats mandatory for dialysis...
When I was burned at 18 months of age all over my body, there were internal injuries as well, one of them being damage to the flap valve(s) in the ureters that allow urine to flow back into the kidney's (never a good thing)
So I have two new doctors. One Urologist is watching me locally (monthly I should say) and the other one is my transplant doc up at Virginia Mason (who I go see the 18th, in a week)
My local urologist saw my blood work and my chronic condition (reflux-induced nephritis) and immediatley ordered me to have an indwelling catheter that will help remove all urine from my kidney. So far it's working real well and since I've been consistently intermittently cathing myself since '87 (12 yrs of age), the permanent cath isn't much of a change.
He said hopefuly this will stop/stabilize or maybe even reverse SOME of the inflammation damage (nephritis) to the kidney. I've since started taking 150mg cbd caps to maybe help in that respect.
I definitely have noticed my mind being alot more muddled as well as my hunger and want of food has sort of dried up. I eat...but I just don't crave or like it...
Anywhoo...just wanted to tell everyone what was happening...I don't know if this transplant doc I see next week is weed friendly or not but when I asked about transplant centers he said this guy's the best on the West Coast and told me to stay away from Swedish Medical for who knows what reason.
Much Love to my MJPeeps,
7greeneyes
When I was burned at 18 months of age all over my body, there were internal injuries as well, one of them being damage to the flap valve(s) in the ureters that allow urine to flow back into the kidney's (never a good thing)
So I have two new doctors. One Urologist is watching me locally (monthly I should say) and the other one is my transplant doc up at Virginia Mason (who I go see the 18th, in a week)
My local urologist saw my blood work and my chronic condition (reflux-induced nephritis) and immediatley ordered me to have an indwelling catheter that will help remove all urine from my kidney. So far it's working real well and since I've been consistently intermittently cathing myself since '87 (12 yrs of age), the permanent cath isn't much of a change.
He said hopefuly this will stop/stabilize or maybe even reverse SOME of the inflammation damage (nephritis) to the kidney. I've since started taking 150mg cbd caps to maybe help in that respect.
I definitely have noticed my mind being alot more muddled as well as my hunger and want of food has sort of dried up. I eat...but I just don't crave or like it...
Anywhoo...just wanted to tell everyone what was happening...I don't know if this transplant doc I see next week is weed friendly or not but when I asked about transplant centers he said this guy's the best on the West Coast and told me to stay away from Swedish Medical for who knows what reason.
Much Love to my MJPeeps,
7greeneyes