Hi Jessica, I mean, SmokinMom. GRRRrrrrrrrrrrrrr! (I always had a thing for Ms. Rabbit)
My epileptic condition was preceded by years of "weird" spells, from being unable to play basketball without losing control of my legs and falling down to extremely painful muscle cramps in my throat to an inability to focus my vision to stuttering to...
I was also told something to the effect that I was "predisposed" to this, somehow, that "a switch flipped" in my brain.
I'm lucky that I have health insurance and a neurologist who prescribed medication that kept me upright. When the grand mals began (was it three years ago???) there was little reason to believe they weren't just going to keep on coming. My life was teetering on the precipice of darkness. When you can't trust your own body the whole world seems really, really scary. The meds I take work for keeping me seizure-free, but they have wonderful side effects like anxiousness, sleeplessness, impatience, dizziness, nausea, rage (my fave), etc. Smokin good herb keeps me mellow and counteracts some of the bad side effects of my meds. I'm blessed to be in a state where I am able to legally have buds.
From what you've written, I don't see any relation between the weed and your condition. I smoked daily for years and years before I had my initial grand mal. I also don't see any relation between my drug use and my epilepsy, though it would be easy to blame my health problem on drugs. I asked my neurologist OVER and OVER again: "Did I do too much LSD or pot or mushrooms or...?" "No." "No." "No." Pretty frustrating, but in the end, who knows?
Listen to your doctors and neurologist, cardboard-cutouts-of-human-beings-they-may-be. They're your best bet to get your seizures under control.
At times, when I haven't been high for a while, after smoking I can sometimes get a bit head-rushy, which can feel like a seizure-type-aura, but this is common to all smokers whether they be epileptic or not, I think. Just hit it a little lighter. dummy...ha! Usually the good herb leaves me feeling relaxed and mellow - the way I supposedly "used to be" pre-epilepsy.
I also lost my driver's license until I had 90 days seizure-free.
So, yeah, you are NOT alone and herb CAN help us deal with our symptoms and better our quality of life. Thanks for posting and best of luck to you!
-C